Partner Organizations

American Porphyria Foundation

Bethesda, MD | View Website

The American Porphyria Foundation has supported the Porphyria community since 1983. Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias. 

1 Stories

Morgan's Story

by Morgan (age 11) | from American Porphyria Foundation

2 Songs