Partner Organizations

NORD (National Organization for Rare Disorders)

Danbury, CT | View Website

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

8 Stories

Bean And Bug

by Aunaleigh and Anden (age 4 and 5) | from NORD (National Organization for Rare Disorders)

1 Song

A Dream Come True

by Nash and Aleigha (age 5 and 8) | from NORD (National Organization for Rare Disorders)

1 Song

The Great Race Holiday

by Paisley and Levi (age 6 and 8) | from NORD (National Organization for Rare Disorders)

1 Song

Noah Family Story

by Noah, Nathaniel, Cassiney, and Nevaeh (age 9, 10, 13, and 17) | from NORD (National Organization for Rare Disorders)

2 Songs

Fish Space

by Cadence and Zeke (age 7 and 9) | from NORD (National Organization for Rare Disorders)

1 Song

Wyatt's Adventure

by Wyatt & Harper (age 14 & 8) | from NORD (National Organization for Rare Disorders)

1 Song