Stories
Lilly's Story
by Lilly (age 15) | Partner Organization: Connecting Families - Urea Cycle Disorder Foundation
This Song Made Possible By:
by Lilly (age 15) | Partner Organization: Connecting Families - Urea Cycle Disorder Foundation
Be sure to contribute to my SMAS Jukebox!
Erin 03/09/2018
Beautiful Family, Beautiful Liliana and Beautiful Song! So inspirational
Matthew Hehman 03/08/2018
Amazing story and song. Great work Lilly and Cris.
Dianna Campbell 03/07/2018
It was such a Pleasure as a Rare Patient Disease Advocate RDLA I met Lilliana Leona and family event during RDLA WEEK 2018. Beautuful family and I truly a believe Art is Healing. The song is beautiful coming from the Heart compose by Liliana. Such a pleasure meeting the loving family.
Bruce Ming 03/01/2018
Thank you Chris and Horizon for helping people with rare diseases. I'm inspired and touched with your dedication to helping patients who suffer from rare diseases
Roxanne Pietka 03/01/2018
You are an amazing inspiration to Lilly and to the Horizon Pharma family. THANK YOU <3
Alan Reisberg 02/27/2018
Cris - what an amazingly positive contribution you're making. Enjoy all the fruits of these selfless labors. Very best, Alan
The Sherman Family 02/25/2018
Great Song.
Anonymous 02/25/2018
<3
Nancy Clifford 02/25/2018
Awesome!
Shelby Lamb 02/23/2018
Thank you so much for helping to give those with a UCD a voice!
Anonymous 02/23/2018
Great example, inspiration for giving voice to those whose stories need to be heard. Thanks Cris! You Go Lilliana, take that song to heart!
Marci L. 02/23/2018
What a powerful instrument you have, Cris - so glad you use it for good!
Laura Kaufman 02/23/2018
magical!
Ann Marie Bingo 02/22/2018
What an amazing and heartfelt song. Truly captured Lily's beauty and strength!
Mark McLaughlin 02/22/2018
Inspired to donate by Cris Jacobs